Empowering Stoma Care : Enhancing Knowledge, Confidence, and Support through Collaborative Approaches Between Doctors and Parental Communities for Children with Stomas
Leecarlo Millano Lumban Gaol 1, Lavenia Quinta Saraswati 1, Grace Shintauli Gultom 1, Melian Anita 2, Yohanes Firmansyah 3, Fiona Valencia Setiawan 3, Bryan Anna Wijaya 3
1 Department of Surgery, Pediatric Surgery Division, Tarakan General Hospital, Central Jakarta, Indonesia
2 Faculty of Medicine Padjadjaran University, Bandung, Indonesia
3 Faculty of Medicine Tarumanagara University, Jakarta, Indonesia
Introduction: Effective postoperative care is pivotal, and parents play a vital role in managing complications and outcomes. Despite their importance, parents often struggle with the complexities of stoma care. Managing pediatric stomas necessitates a collaborative effort between healthcare professionals and community support, forming a multidisciplinary team that empowers parents with the knowledge and confidence required for effective stoma management.
Purpose and Objectives: This study assesses the impact of collaborative efforts between doctors and community support systems on children's quality of stoma care.
Methods: A cross-sectional study involving 224 participants evaluated the influence of stoma support communities in Jakarta. The study used a validated 11-question questionnaire to measure community impact and stoma care knowledge.
Results: Spearman Correlation analysis indicated significant relationships between doctor-patient communication and factors such as the stoma's condition (r:0.285, p<0.001), knowledge (r:0.417, p<0.001), support in stoma care (r:0.458, p<0.001), self-confidence (r:0.440, p<0.001), support systems (r:0.407, p<0.001), and ease of access to care (r:0.357, p<0.001). Multivariate analysis highlighted that the quality of doctor-patient communication significantly affects stoma condition, support systems, self-confidence, and access to care (p<0.025). ROC prediction analysis showed that effective doctor-patient communication through Komunitas Stoma Pada Anak Jakarta (KOSPAJA) significantly enhances support and self-confidence in stoma care (A>0.70).
Conclusion: The collaboration between doctors and community support significantly enhances parents' knowledge, confidence, and support in managing their child's stoma, leading to improved care quality and reduced complication rates.
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